University of Delaware Participant Recruitment Registry for Parkinson's Disease Research
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 1,000
- 试验地点
- 1
- 主要终点
- Parkinson's Disease Diagnosis
研究概览
简要总结
The purpose of this Parkinson's Disease Registry is to assist with recruitment of willing participants into future Parkinson's disease research studies at the University of Delaware.
详细描述
There is an urgent need for Parkinson's Disease research due to its increasing global prevalence. Participant recruitment is a significant challenge to the success of Parkinson's disease research and we need your help more than ever in moving the field forward and improving the lives of people who have Parkinson's disease. Recruitment of study participants can be facilitated by maintaining registries of people who agree to be contacted for future studies.
The purpose of the University of Delaware Participant Recruitment Registry for Parkinson's Disease Research is to create a registry that includes the contact information and basic health information pertaining the participant's diagnosis of Parkinson's disease. The registry will streamline recruitment and enrollment in a variety of research studies focusing on topics such as, but not limited to: brain changes in Parkinson's disease, balance and gait in Parkinson's disease, exercise and its effect on motor function.
To be in the registry individuals must have a clinical diagnosis of Parkinson's Disease and have an interest in participating in research studies.
To become a member of this registry, primary information including contact information and some general medical information are needed.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 21 Years 至 100 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Individual 21 years old or older
- •A clinical diagnosis of Parkinson's disease
- •Interest in participating in one or more investigator-led research studies at the University of Delaware
排除标准
- •Individuals with a clinical diagnosis of parkinsonism that is not considered primary (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.)
- •Clinical diagnosis of dementia
结局指标
主要结局
Parkinson's Disease Diagnosis
时间窗: Once a year, at the beginning of the year
By following up once a year, we will evaluate a participant's medical history to validate a diagnosis of Parkinson's Disease. A confirmed diagnosis of Parkinson's Disease is a criteria for continuing to be a part of the registry.
次要结局
未报告次要终点
研究者
Roxana Burciu
Roxana Burciu, PhD
University of Delaware