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临床试验/NCT03930823
NCT03930823已完成不适用

Advance Care Planning Among Older People From Turkish Origin in Belgium: An Exploratory Interview Study

Universitair Ziekenhuis Brussel2 个研究点 分布在 1 个国家目标入组 51 人开始时间: 2019年3月18日最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
入组人数
51
试验地点
2
主要终点
Knowledge about advance care planning from older people from Turkish origin in Belgium

研究概览

简要总结

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails.

Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking.

The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

研究设计

研究类型
Interventional
分配方式
Na
干预模型
Single Group
主要目的
Other
盲法
None

入排标准

年龄范围
65 Years 至 —(Older Adult)
性别
All
接受健康志愿者

入选标准

  • with Turkish origin who live in Belgium and are older than 65 years
  • who have also given informed consent to participate in this qualitative interview study

排除标准

  • Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)
  • Having cognitive impairment

结局指标

主要结局

Knowledge about advance care planning from older people from Turkish origin in Belgium

时间窗: 9 months

This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?

Experiences about advance care planning from older people from Turkish origin in Belgium

时间窗: 9 months

This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?

Views/preferences about advance care planning from older people from Turkish origin in Belgium

时间窗: 9 months

This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?

Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium

时间窗: 9 months

This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?

Attitudes about advance care planning from older people from Turkish origin in Belgium

时间窗: 9 months

This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?

次要结局

未报告次要终点

研究者

申办方类型
Other
责任方
Sponsor

研究点 (2)

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