A pre-experimental study to assess the effectiveness of nurse-led counselling on psycho-social problems, knowledge, practices and treatment adherence among parents of children with Congenital Adrenal Hyperplasia attending Pediatric Endocrinology OPD PGIMER, Chandigarh 2020-22
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 50
- 试验地点
- 1
- 主要终点
- to assess the effectiveness of nurse-led counselling on psychosocial problems, knowledge, practices and treatment adherence among parents of children with Congenital Adrenal Hyperplasia attending Pediatric Endocrinology OPD, APC, PGIMER, Chandigarh, 2020-22.
研究概览
简要总结
It is a pre-experimental (one group pre-test post-test design). nurse-led intervention will be planned in the form of a booklet to provide knowledge to the parents about the disease, its inheritance pattern, possible treatment options and prevention. psycho-social issues, knowledge, practices and treatment adherence will be assessed by different tools pre-intervention and then after intervention and follow-up will be done at 1 month and 2 month.
研究设计
- 研究类型
- Interventional
- 分配方式
- Not Applicable
- 盲法
- Not Applicable
入排标准
- 年龄范围
- 0.00 Year(s) 至 12.00 Year(s)（—）
- 性别
- All
入选标准
- •parents of children upto 12 years of age with CAH attending Pediatric Endocrinology OPD PGIMER Chandigarh.
排除标准
- •Parents of children having any other genetic/medical disorder.
结局指标
主要结局
to assess the effectiveness of nurse-led counselling on psychosocial problems, knowledge, practices and treatment adherence among parents of children with Congenital Adrenal Hyperplasia attending Pediatric Endocrinology OPD, APC, PGIMER, Chandigarh, 2020-22.
时间窗: at baseline, after intervention same day, at 4 weeks and 8 weeks
次要结局
- To assess the baseline psychosocial problems, knowledge, practices and treatment adherence among parents of children with CAH.(2. To develop and implement a nurse led counselling for parents of children with CAH.)