Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 72
- 试验地点
- 2
- 主要终点
- Completion of the EPT six weeks from the baseline visit
研究概览
简要总结
The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Parallel
- 主要目的
- Prevention
- 盲法
- Double (Investigator, Outcomes Assessor)
入排标准
- 年龄范围
- 55 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Must be 55 years of age or older at the time of signing the informed consent
- •Must self-identify as the spouse or partner of the PWD (may be subject to independent verification per PI discretion, e.g., medical record review or a signed doctor's note)
- •Must provide some caregiving to a PWD
- •Must live in the same dwelling as the PWD
排除标准
- •Diagnosis of dementia
- •Unable to use or does not have access to a computer
- •Complete deafness or blindness and/or unable to use a telephone
- •Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
- •Unable to follow directions
- •Unable to read or write in English
- •Participation in prior study involving the EPT
研究组 & 干预措施
EPT-C
The EPT-C group will receive two coaching sessions to assist with the completion of the EPT.
干预措施: Coaching Sessions (Behavioral)
EPT-A
The EPT-A group will be responsible for completing the EPT alone, without coaching sessions.
结局指标
主要结局
Completion of the EPT six weeks from the baseline visit
时间窗: Six weeks
This will be measured using de-identified data from the EPT system.
次要结局
- Identification and engagement of a standby caregiver six weeks from the baseline visit(Six weeks)
- Change in caregiver preparedness from baseline to Month 3(Three months)
- Change in caregiver confidence from baseline to Month 3(Three months)
- Change in caregiving self-efficacy from baseline to Month 3(Three months)
- Qualitative data and theme identification from participant experience surveys and EPT-C coaching session recordings(Three months)