Evaluating the Treatment in the the Center for Disabled People in Aachen (MZEB Aachen) - a Registry on Patients With Severe Disabilities
试验速览
- 阶段
- 不适用
- 状态
- 招募中
- 入组人数
- 2,000
- 试验地点
- 1
- 主要终点
- change in number of therapy sessions
研究概览
简要总结
Evaluation of patient characteristics, involved physicians and therapists as well as therapies in a German University Center for the Treatment of patients with intellectual disabilities and severe multiple disability (MZEB Aachen)
详细描述
In the MZEB Aachen, since 11/2018 patients with intellectual disabilities and/or severe multiple disabilities are diagnosed, treated and accompanied for many years in a multidisciplinary setting with physicians, nurses, physiotherapists, ergo therapists, speech therapists and Support by social workers. MZEBs are considered to have a pilot function in the health care system, cooperating with therapists and physicians in the surroundings. This concept is established as a new concept in Germany in order to optimise health care for patients with disabilities. Thus we want to investigate patient characteristics, diagnoses, involved physicians and therapists as well as proposed therapies and disease progress in this center.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 80 Years（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •intellectual disability and/or severe multiple disability (disability degree GdB at least 70 and at least one noticeable sign
- •willing to participate
排除标准
- •housed in an Institution and/or prison
结局指标
主要结局
change in number of therapy sessions
时间窗: baseline and after one year treatment
change in the number of therapy sessions per month
Change in diagnoses
时间窗: baseline and after one year treatment
Change in percentage of definite diagnoses
次要结局
未报告次要终点
研究者
Andrea Maier
Principal Investigator
RWTH Aachen University