Measuring physical capacity, musculoskeletal complaints, and physical and psychosocial functioning in children and adolescents with connective tissue disorders. - Follow You measurement

Academisch Medisch Centrum0 个研究点目标入组 42 人开始时间: 待定最近更新: 2024年4月15日

试验速览

Trial is onging in other countries

•This study will include children and adolescents (4-18 years old) who are
•diagnosed with either Marfan syndrome, Ehlers-Danlos Syndromes or Loeys-Dietz
•syndrome. In the Netherlands, children need to be treated in the Amsterdam
•University Medical Centers (UMC), location AMC, or in another hospital when the
•children are diagnosed with Ehlers-Danlos.
•In Belgium, children need to be treated in the University Hospital Ghent
•(UZ-Ghent).
•The origin of the children and parents can be of every country and/or

•Children/ adolescents who, next to the Marfan syndrome, Ehlers-Danlos Syndromes
•or Loeys-Dietz syndrome, have another prominent chronic disease affecting their
•physical functioning, or children who are seriously cognitive impaired or
•completely wheelchair dependent.

发起方