Evaluation of Knowledge and Practices About Contraception, Sexuality and Transmission Among Adolescents With Sickle Cell Disease.
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 99
- 试验地点
- 1
- 主要终点
- Score value of the questionnaire on general knowledge on contraception
研究概览
简要总结
Evaluation of knowledge about contraception in sickle cell adolescents.
详细描述
Sickle cell teenagers receive regular hospital medical care.
Adolescence is the time when the pathophysiology of the disease is re-explained and when questions around puberty (possibly delayed), sexuality and contraception are discussed.
Sickle cell disease, like any chronic disease, can have repercussion on the development and behavior of young patients.
Knowledge and understanding of young patients with sickle cell disease around these issues may be insufficient.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 14 Years 至 19 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patients with sickle cell disease followed at the CHIC
- •Aged 14 to 19
- •Both sexes
排除标准
- •Neurological disorders that can impede understanding of the questionnaire.
- •Refusal to participate.
- •Not affiliated to social security.
结局指标
主要结局
Score value of the questionnaire on general knowledge on contraception
时间窗: at inclusion
questionnaire on general knowledge on contraception rated by 4 questions
次要结局
- Score value of the questionnaire onspecific knowledge about the impact of sickle cell disease on the course of sexuality(at inclusion)
- Score value of the questionnaire on the transmission of the disease knowledge(at inclusion)
- Score value of the questionnaire on specific knowledge about the impact of sickle cell disease on the course of puberty(at inclusion)
- gender of the patient with sickle cell disease(at inclusion)
- age of the patient with sickle cell disease(at inclusion)
- number of hospitalizations of the patient with sickle cell disease(at inclusion)
- Score value of the questionnaire on specific knowledge on the transmission of the disease(at inclusion)
研究者
Adele CARLIER-GONOD
Peadiatrician
Centre Hospitalier Intercommunal Creteil