Evaluating Psychoeducation for People With Autism Spectrum Disorder
试验速览
- 阶段
- 不适用
- 入组人数
- 40
- 试验地点
- 2
- 主要终点
- Child Behaviour Checklist
研究概览
简要总结
When a clinician gives an autism spectrum disorder (ASD) diagnosis they hope this will be helpful to the person receiving it and their family. In reality children with an ASD describe few benefits to receiving this diagnosis - they often report feeling confused and stigmatised by it. Parents can also struggle to understand their child's diagnosis and report needing greater support from professionals in this respect (Midence & O'neill, 1999; Osborne & Reed, 2008).
Little is known about how to help children and families integrate their ASC 'label' in a positive way. Whilst there is anecdotal evidence that psychoeducation after diagnosis can help, there has been no formal evaluation of this approach and no evidence-based programmes of this type are available. In the current study the investigators aim to test empirically a psychoeducational programme for children with an ASD ('PEGASUS'), using a randomised controlled design. The investigators aim to evaluate whether this psychological and educational intervention impacts positively upon understanding of ASC, self-esteem, functional adaption, well-being and family functioning.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Single Group
- 主要目的
- Treatment
- 盲法
- None
入排标准
- 年龄范围
- 9 Years 至 14 Years（Child）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Received an ASD diagnosis from Child and Adolescent Psychiatrist, Clinical Psychologist or Paediatrician.
- •Aware of ASD diagnosis.
- •Aged between 9 and 14 years.
- •Able to function in group setting, as evidenced in educational context.
- •Speaks English
排除标准
- •No generalised Intellectual Disability as indicated by IQ below
- •Not engaged in additional formal psychosocial intervention during study period.
- •Not taking psychiatric medication at baseline assessment, or taking a stable dose of psychiatric medication expected to remain constant throughout study participation.
结局指标
主要结局
Child Behaviour Checklist
时间窗: 30 months
All measures taken at baseline, termination of treatment and six months follow-up.
Autism Knowledge Questionnaire
时间窗: 30 months
All measures taken at baseline, termination of treatment and six months follow-up.
Vineland-II, Rosenburg Self-Esteem Scale
时间窗: 30 months
All measures taken at baseline, termination of treatment and six months follow-up.
Parenting Stress index
时间窗: 30 months
All measures taken at baseline, termination of treatment and six months follow-up.
次要结局
- Qualitative interview conducted at baseline and termination.(30 months)