Resilience Training Intervention: Its Effect on Parental Acceptance/Rejection and Burden of Children With Down Syndrome
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 入组人数
- 50
- 试验地点
- 2
- 主要终点
- Parental Acceptance-Rejection scale
研究概览
简要总结
This research will test whether a resilience training program can help parents of children with Down syndrome feel more accepting of their child and experience less caregiving burden.
Parents who care for a child with Down syndrome often face stress and emotional challenges. Building psychological resilience-the ability to adapt and recover from stress-may improve how parents cope and relate to their children.
The study will include about 50 parents of children with Down syndrome. Participants will be randomly assigned to one of two groups:
Experimental group: Receives the resilience training program.
Control group: Receives usual care.
Study phases
Before the program: Parents complete questionnaires that measure their resilience, their acceptance or rejection of their child, and their caregiving burden.
During the program: Parents in the experimental group attend a structured resilience training program based on their expressed needs.
After the program: The same questionnaires are repeated immediately after the program and again at a follow-up to see if any changes last.
The research hypothesis is that parents who take part in the resilience training will show higher acceptance, lower rejection, and reduced caregiving burden compared with parents who receive usual care.
This study will provide evidence on whether resilience training is a helpful, practical, and safe way to support families raising a child with Down syndrome.
详细描述
This quasi-experimental study will evaluate the effectiveness of a resilience training intervention on parental acceptance/rejection and caregiving burden among parents of children with Down syndrome.
Design
A non-randomized, controlled, pretest-posttest, repeated-measures design will be used. Approximately 50 parents will be allocated into an experimental group and a control group, based on availability and willingness to participate. Measurements will be taken at baseline, immediately post-intervention, and at follow-up.
Study Phases
Phase 1 - Needs assessment and program development
研究设计
- 研究类型
- Interventional
- 分配方式
- Non Randomized
- 干预模型
- Parallel
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Biological parent (mother or father) of a child (birth to 3 years old) diagnosed with Down syndrome.
- •Age 18 years or older.
- •Able to read and understand the study questionnaires and provide informed consent.
- •Willing to attend all resilience training sessions (for the experimental group).
- •parents who are not responsible for caring of any other patients in the family
排除标准
- •Presence of severe mental illness (e.g., psychosis) or cognitive impairment that would hinder participation.
- •Current enrollment in another structured psychological or parenting program aimed at resilience or acceptance.
- •Any acute medical condition preventing attendance of the sessions.
结局指标
主要结局
Parental Acceptance-Rejection scale
时间窗: Baseline (pre-intervention), immediately post-intervention, and 1-month follow-up
Mean change in parental acceptance-rejection score of parents of children with Down syndrome, measured using the Parental Acceptance-Rejection Questionnaire (PARQ) at baseline, immediately post-intervention, and 1-month follow-up.
次要结局
- Change in Caregiver Burden Score(Baseline, immediately post-intervention, and 1-month follow-up)
- Change in Maternal Resilience(Baseline, post-intervention, 1-month follow-up)