Impact of Covid-19 Pandemic on Children With Neuromuscular Disease and Their Parents in Turkey: Parent Perspective
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 134
- 试验地点
- 1
- 主要终点
- The questionnaire which created by the researchers
研究概览
简要总结
Parents of children with neuromuscular disease have been already at risk of depression, anxiety and burden. Additionally, the daily lives of children with neuromuscular disease and their parents have been significantly affected by the COVID-19 pandemic. Therefore, this study investigated parents' perspective on the effect of the COVID-19 pandemic on children with neuromuscular diseases and themselves.
详细描述
The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9).
研究设计
- 研究类型
- Observational
- 观察模型
- Family Based
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •taking care for a child with NMD whose age was between 0-18 years,
- •having the ability to read and write Turkish language,
- •having access to phone or e-mail,
- •being volunteer.
排除标准
- •having a child who have an additional diagnosis besides NMD and taking care of any other person in the family.
结局指标
主要结局
The questionnaire which created by the researchers
时间窗: 30 minutes
The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families.
次要结局
- Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9)(5 minutes)
研究者
Merve Bora
Physiotherapist
Hacettepe University