COVID-19 Pandemic and Parents of Disabled Children

Not Applicable

Completed

• Conditions: COVID-19; Muscular Dystrophies; Disabilities Multiple; Cerebral Palsy
• Interventions: Other: Difficulties lived by disabled children's parents in the period of COVID-19 pandemic

• Registration Number: NCT04525742
• Lead Sponsor: Gaziosmanpasa Research and Education Hospital

Brief Summary

Pandemic period could affect the disabled children's rehabilitation and follow-up negatively because of preventive measures and this could create adverse results on their parents.

In this research, it is aimed to determine the positive and negative effects of pandemic on parents and disabled children and to provide an insight for future solutions.

Detailed Description

To determine the effect of COVID-19 pandemic and the possible difficulties experienced by the parents of disabled children, a questionnaire was prepared. It takes approximately 10-15 minutes to complete the survey. Questionnaire is loaded to qualtrics program and sent to the families by e-mail or social media accounts.

Study Timeline

• Study First Submitted: 2020-06-28
• Study Start: 2020-07-05
• Study First Submitted QC: 2020-08-23
• Study First Posted: 2020-08-25
• Primary Completion: 2020-08-30
• Study Completion: 2020-09-15
• Status Verified: 2020-10
• Last Update Submitted: 2020-10-31
• Last Update Posted: 2020-11-03

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 309

Inclusion Criteria

• Having disabled child/children
• Having ability and facility to use internet
• Having ability to read and write
• Having enough cognitive capacity to answer the questionnaire
• To accept to participate the research

Exclusion Criteria

• Not having disabled child/children
• Not having ability and facility to use internet
• Not having ability to read and write
• Not having enough cognitive capacity to answer the questionnaire
• Not to accept to participate the research

Study & Design

• Study Type: INTERVENTIONAL
• Study Design: SINGLE_GROUP

Arm && Interventions

Group	Intervention	Description
Parents who have a disabled child or children	Difficulties lived by disabled children's parents in the period of COVID-19 pandemic	Parents having disabled child or children will be included in the research and it will be wanted to complete the survey questionary

Primary Outcome Measures

Name	Time	Method
A questionnaire that we created will be used to determine the difficulties experienced by disabled children's parents during Covid 19 pandemic related to their medical follow-up	4 weeks	Difficulties related to rehabilitation facilities, other medical conditions or ortosis could increase because of Covid 19 pandemic unique conditions

Secondary Outcome Measures

Name	Time	Method
The Fear of COVID-19 Scale	4 weeks	The Fear of COVID-19 Scale, a seven-item scale, has robust psychometric properties. It is reliable and valid in assessing fear of COVID-19 among the general population and will also be useful in allaying COVID-19 fears among individuals. Score is minimum 7 pointts and maximum 35 points.

Trial Locations

Locations (1)

Health Science University Gaziosmanpasa Training and Research Hospital; 🇹🇷 İstanbul, Gaziosmanpasa, Turkey