ational study of moderate and severe von Willebrand disease in the Netherlands

Completed

• Conditions: von Willebrand disease; vWD; bloed- en lymfestelsel aandoeningen: stollingsstoornissen en bloedingsdiathesen

• Registration Number: NL-OMON53028
• Lead Sponsor: Erasmus MC, Universitair Medisch Centrum Rotterdam

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 22 July 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 1000

Inclusion Criteria

1) haemorrhagic symptoms or
a family history of von Willebrand disease
2) vWF antigen <= 30%, lowest measurement counts and/or
vWF activity (vWF:RCo of vWF:CB) <= 30%, lowest measurement counts and/or
FVIII:C <= 40 %, lowest measurement counts
3) being known in a hemophilia treatment center or
if only the diagnose is made in a hemophilia treatment center this must be
done
after 1987

Exclusion Criteria

Hemophilia A
Carriership of hemophilia A
No informed consent

Study & Design

• Study Type: Observational invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>See study design</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>See study design</p><br>