Improving Communication and Building a Stronger Medical Home Among Spanish-speaking Families
- Conditions
- Non Hodgkin LymphomaLeukemia
- Interventions
- Other: Interview
- Registration Number
- NCT05425992
- Lead Sponsor
- University of Colorado, Denver
- Brief Summary
This study will seek to improve communication with Spanish speaking families and patients with Cancer and Blood Disorders.
- Detailed Description
The Principal Investigator seeks to improve communication with Spanish speaking families with the following goals: 1) to increase patient and family sense of inclusion in the medical community, 2) to increase patient and family medical knowledge and understanding, 3) to improve patient adherence with critical medical regimens, and ultimately, 4) to increase equality of comprehensive medical care delivery across the continuum of care including physical and psychosocial domains.
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 20
- 0 to 22 years of age
- Diagnosis of leukemia or non-Hodgkin lymphoma
- Spanish as preferred language for patient, parent or guardian
- Received or receiving care at the Center for Cancer and Blood Disorders (CCBD)
- Patients without oncologic diagnosis
- Patients with parents whose language preference is English
- Patients who received care solely outside of the CCBD
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description Patients treated in CCBD Interview Patients who are currently receiving therapy at the Center for Cancer and Blood Disorders
- Primary Outcome Measures
Name Time Method Determine a baseline level of Spanish speaking patient satisfaction of care 12 months Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Determine a baseline level of Spanish Speaking family satisfaction of care 12 months Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Determine effects of language barrier on Spanish speaking patient needs 12 months Understand the patient experience using qualitative interview of Spanish speaking patients and families.
Determine satisfaction based on open-ended question to determine a list or pattern of common patient needs.Determine the effect of language barrier on barriers to patient care 12 months Understand the patient experience using qualitative interview of Spanish speaking patients and families.
Determine satisfaction based on open-ended question to determine a list or pattern of common barriers to patient care.Effect of language barrier on efficiency of access to care 12 months Understand the patient experience using qualitative interview of Spanish speaking patients and families.
Determine satisfaction based on open-ended question to determine how quickly patient was able to receive care.
- Secondary Outcome Measures
Name Time Method Determine Spanish speaking patient interest in telemedical check-ins during intensive phases of therapy 12 months Open-ended questions will be used to determine level of interest in a telemedical support during treatment.
Determine patient interest in home telemedicine support program after discharge 12 months Open-ended questions will be used to determine level of interest in a telemedicine support program to be used after discharge from hospital.
Determine patient interest in home telemedicine support program 12 months Open-ended questions will be used to determine level of interest in a telemedicine support program.
Determine Spanish speaking patient interest in medication assistance during intensive phases of therapy 12 months Open-ended questions will be used to determine level of interest in a telemedical medication support during therapy.
Determine Spanish speaking patient interest in medical check-ins during maintenance 12 months Open-ended questions will be used to determine level of interest in a telemedical check-ins during maintenance.
Determine Spanish speaking patient interest in medication assistance during maintenance 12 months Open-ended questions will be used to determine level of interest in a telemedical medication assistance during maintenance.
Trial Locations
- Locations (1)
Children's Hospital Colorado
🇺🇸Aurora, Colorado, United States