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Improving Communication and Building a Stronger Medical Home Among Spanish-speaking Families

Recruiting
Conditions
Non Hodgkin Lymphoma
Leukemia
Interventions
Other: Interview
Registration Number
NCT05425992
Lead Sponsor
University of Colorado, Denver
Brief Summary

This study will seek to improve communication with Spanish speaking families and patients with Cancer and Blood Disorders.

Detailed Description

The Principal Investigator seeks to improve communication with Spanish speaking families with the following goals: 1) to increase patient and family sense of inclusion in the medical community, 2) to increase patient and family medical knowledge and understanding, 3) to improve patient adherence with critical medical regimens, and ultimately, 4) to increase equality of comprehensive medical care delivery across the continuum of care including physical and psychosocial domains.

Recruitment & Eligibility

Status
RECRUITING
Sex
All
Target Recruitment
20
Inclusion Criteria
  • 0 to 22 years of age
  • Diagnosis of leukemia or non-Hodgkin lymphoma
  • Spanish as preferred language for patient, parent or guardian
  • Received or receiving care at the Center for Cancer and Blood Disorders (CCBD)
Read More
Exclusion Criteria
  • Patients without oncologic diagnosis
  • Patients with parents whose language preference is English
  • Patients who received care solely outside of the CCBD
Read More

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Patients treated in CCBDInterviewPatients who are currently receiving therapy at the Center for Cancer and Blood Disorders
Primary Outcome Measures
NameTimeMethod
Determine a baseline level of Spanish speaking patient satisfaction of care12 months

Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.

Determine a baseline level of Spanish Speaking family satisfaction of care12 months

Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.

Determine effects of language barrier on Spanish speaking patient needs12 months

Understand the patient experience using qualitative interview of Spanish speaking patients and families.

Determine satisfaction based on open-ended question to determine a list or pattern of common patient needs.

Determine the effect of language barrier on barriers to patient care12 months

Understand the patient experience using qualitative interview of Spanish speaking patients and families.

Determine satisfaction based on open-ended question to determine a list or pattern of common barriers to patient care.

Effect of language barrier on efficiency of access to care12 months

Understand the patient experience using qualitative interview of Spanish speaking patients and families.

Determine satisfaction based on open-ended question to determine how quickly patient was able to receive care.

Secondary Outcome Measures
NameTimeMethod
Determine Spanish speaking patient interest in telemedical check-ins during intensive phases of therapy12 months

Open-ended questions will be used to determine level of interest in a telemedical support during treatment.

Determine patient interest in home telemedicine support program after discharge12 months

Open-ended questions will be used to determine level of interest in a telemedicine support program to be used after discharge from hospital.

Determine patient interest in home telemedicine support program12 months

Open-ended questions will be used to determine level of interest in a telemedicine support program.

Determine Spanish speaking patient interest in medication assistance during intensive phases of therapy12 months

Open-ended questions will be used to determine level of interest in a telemedical medication support during therapy.

Determine Spanish speaking patient interest in medical check-ins during maintenance12 months

Open-ended questions will be used to determine level of interest in a telemedical check-ins during maintenance.

Determine Spanish speaking patient interest in medication assistance during maintenance12 months

Open-ended questions will be used to determine level of interest in a telemedical medication assistance during maintenance.

Trial Locations

Locations (1)

Children's Hospital Colorado

🇺🇸

Aurora, Colorado, United States

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