Registry for BCR-ABL negative myeloproliferative neoplasms

Recruiting

• Conditions: D47.1; D47.3; D47.4; D45; D47.0; Chronic myeloproliferative disease; Essential (haemorrhagic) thrombocythaemia; Osteomyelofibrosis; Polycythaemia vera; Histiocytic and mast cell tumours of uncertain and unknown behaviour

• Registration Number: DRKS00010288
• Lead Sponsor: niversitätsklinikum Freiburg Innere Medizin I - Hämatologie und Onkologie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2016-04-18
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 1000

Inclusion Criteria

Age =18 years
- Patients with BCR-ABL negative MPN of the following entitities: primary myelofibrosis (PMF), polycythemia vera (PV), essential thrombocythemia (ET), post-PV or ET myelofibrosis (PPVMF/PETMF), systemic mastozytosis (SM), unclassifiable myeloproliferative neoplasm (MPN, U) or acute myeloid leukemia (AML) after MPN
- Signed informed consent

Exclusion Criteria

/

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Completeness of the register, event free survival (EFS), overall survival (OS), quality of life, symptom burden