Informed Brain Cancer Patients
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Sponsor
- University of Florida
- Enrollment
- 27
- Locations
- 1
- Primary Endpoint
- Explore the factors involved in health care literacy from the perspective of brain cancer patients.
Study Overview
Brief Summary
The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.
Detailed Description
A mere subset of the reasons behind unmet health care literacy needs include the health care systems' increasing complexity, increased time constraints, profound treatment decision making requirements, decreased financial resources, fracturing social networks and diversifying educational and cultural needs.
This project will use focus groups to explore the factors involved in brain cancer health care literacy from the perspectives of patients and those involved in their care. Hypothesis generated from this project will be directly applied toward future projects. The overarching goals are improved access and adequacy of health care literacy information through the eventual development of validated, useful, reliable health care literacy information tools for brain cancer patients and those involved in their care.
Study Design
- Study Type
- Observational
- Time Perspective
- Prospective
Eligibility Criteria
- Ages
- 18 Years to 89 Years (Adult, Older Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •BRAIN TUMOR PATIENTS:
- •18 to 89 years of age
- •Have or have had any type of brain tumor
- •Ability to communicate in English
- •Willingness to participate in a 30-60 minute focus group
- •HEALTH CARE PROVIDERS:
- •18 to 89 years of age
- •Be a health care provider who cares for any type of brain tumor
- •Ability to communicate in English
- •Willingness to participate in a 30-60 minute focus group
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
Explore the factors involved in health care literacy from the perspective of brain cancer patients.
Time Frame: 1 Year
An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.
Secondary Outcomes
- Explore the factors involved in health care literacy from the perspective of health care providers.(1 Year)