Coaching for Caregivers of Children With Spinal Cord Injury

Not Applicable

Completed

Brief Summary: This pilot study has two aims. The first aim is to establish the feasibility of coaching for caregivers of youth with spinal cord injury, and the second aim is to establish methodological procedures for a future multi-center study on the effectiveness of coaching as an intervention for caregivers of youth with spinal cord injury.

Detailed Description: This study addresses the unmet needs of female primary informal caregivers of youth with spinal cord injury. A one-group pre-post treatment design will be used. Consented caregivers will receive coaching via face-to-face or via the phone. Each caregiver will participate in up to 10 coaching sessions. Each coaching session will last up to 90 minutes. Coaching sessions will be audiorecorded and transcribed verbatim. Outcomes of coaching on caregivers' self-identified goals will be assessed using the Canadian Occupational Performance Measure.

Recruitment & Eligibility

Inclusion Criteria

female primary caregiver of youth between 6-13 years of age with traumatic spinal cord injury
female primary caregivers have legal guardianship of their child with spinal cord injury
speak, read and comprehend English
be available for face-to-face coaching
have a cell phone with text messaging capabilities, and willing to utilize cell or land line for coaching and data collection
able to verbalize changes in their own participation or their child's participation during initial screen
written consent

Exclusion Criteria

severe mental health condition of female caregiver, as documented in child's medical record or reported to research staff by child's treating MD or medical team member
abuses illicit or prescribed substances or alcohol at time of initial screen as documented in child's medical record or reported to research staff by child's treating MD or medical team member

Primary Outcome Measures

Name	Time	Method
Change in Canadian Occupational Performance Measure (COPM)	Baseline - before coaching and repeated at end of 10 coaching sessions (12 weeks from baseline)	Rates self perceived performance and satisfaction with self-identified goals on a 10 point likert scale (1 cannot do, not satisfied; 10 can do without a problem, very satisfied). A 2-point change is considered clinically meaningful.

Secondary Outcome Measures

Name	Time	Method

Locations (2): Shriners Hospitals for Children
🇺🇸
Philadelphia, Pennsylvania, United States
TIRR Memorial Hermann Rehabilitation Hospital
🇺🇸
Houston, Texas, United States
Shriners Hospitals for Children
🇺🇸Philadelphia, Pennsylvania, United States