Turkish Version of The Measure of Processes of Care (MPOC)
- Conditions
- Cerebral PalsyAutism Spectrum DisorderTraumatic Brain InjuryDisability PhysicalMuscular DystrophiesDisability, DevelopmentalDown Syndrome
- Interventions
- Other: Participation
- Registration Number
- NCT03508583
- Lead Sponsor
- Hacettepe University
- Brief Summary
Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)
- Detailed Description
The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same five scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following five scales:
1 Enabling and partnership; 2 Providing general information; 3 Providing specific information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.
The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.
Recruitment & Eligibility
- Status
- UNKNOWN
- Sex
- All
- Target Recruitment
- 300
- To be diagnosed as disabilities and special needs
- Pediatric service providers who agree to participate to study
- Children whose family didn't accept to participate to study
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description Participation Participation Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP)
- Primary Outcome Measures
Name Time Method The Measure of Processes of Care (MPOC- 56) MPOC 56 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. Assessing of the participation level of children. The Measure of processes of care-56 (MPOC 56) will be applied for once for 300 participants. The MPOC consists of 56 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 56 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.
The Measure of Processes of Care 20 (MPOC- 20) MPOC 20 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. The measure of processes of care consists of 20 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 20 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.
The Measure of Processes of Care for services providers (MPOC- SP) MPOC SP was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. Self-assessment tool for pediatric service providers that measures the extent to which the services they provide are family-centred. The Measure of Processes of Care for Service Providers consists of 27 items categorized into four scales: (1) Showing Interpersonal Sensitivity (SIS), (2) Providing General Information (PGI), (3) Communicating Specific Information about the Child (CSI), and (4) Treating People Respectfully (TPR), .All response options are labelled, ranging from 1 ('never') to 7 ('to a great extent'). A higherscore reflects a more favourable judgement of the care process.
- Secondary Outcome Measures
Name Time Method Child Health Questionnaire - Parent Form 50 At baseline] Assessing health-related quality of life of children