Registry Study on Rare Cancers in Korea

Recruiting

• Conditions: Rare Cancer

• Registration Number: NCT06746766
• Lead Sponsor: Yonsei University

Brief Summary

This study aims to determine the participation rate of patients with registered rare cancers in clinical research.

Detailed Description

Data collection includes:

* Clinical characteristics (diagnosis, treatment information, primary/metastatic sites, staging, gender/age)

* Survival information (diagnosis date, recurrence date, death date, disease progression)

* Pathological information (diagnosis, genomic information)

Study Timeline

• Study Start: 2024-11-18
• Status Verified: 2024-12
• Study First Submitted: 2024-12-09
• Study First Submitted QC: 2024-12-17
• Last Update Submitted: 2024-12-17
• Study First Posted: 2024-12-24
• Last Update Posted: 2024-12-24
• Primary Completion: 2027-12-01
• Study Completion: 2027-12-01

Recruitment & Eligibility

• Status: RECRUITING
• Sex: All
• Target Recruitment: 500

Inclusion Criteria

• Adults aged ≥19 years
• Confirmed rare cancer
• Life expectancy ≥3 months

Exclusion Criteria

-Serious or unstable medical/psychiatric conditions

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Establish a registry	1 year	Establish a registry of rare cancer patients visiting the institution

Secondary Outcome Measures

Name	Time	Method
Clinical trial registration rate (%)	1 year	Clinical trial registration rate (%)

Trial Locations

Locations (1)

Severance Hospital; 🇰🇷 Seoul, Korea, Republic of