Assessment of Nutritional and Growth Status in Rett Syndrome Patients
- Conditions
- Neurologic DisorderRett Syndrome
- Registration Number
- NCT06335368
- Lead Sponsor
- National Taiwan University Hospital
- Brief Summary
Children with Rett syndrome are in a period of rapid growth, and proper and appropriate nutritional support is very important. Past foreign research papers it has been pointed out that most of these patients have feeding difficulties, dysphagia, and digestive tract abnormalities, are often constipated, and may suffer from osteoporosis and other problems. Lack of proper nutritional support will seriously affect their growth, development and health. in view of There is a lack of relevant research in China, so the investigators would like to use this research to explore the nutritional, growth and postural status of Rett's disease patients, as the reference direction and goal of dietary adjustment and nutritional support for patients, and establish dietary and nutritional strategies for sick children in Taiwan.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 70
- Rett syndrome patient.
- Not Rett syndrome patient.
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Change in Body height 1 year The growth status of the case will be assessed
Change in Body weight 1 year The growth status of the case will be assessed
Change in arms height 1 year The growth status of the case will be assessed and growth curve
Change in hip circumferences 1 year The growth status of the case will be assessed
Change in waist 1 year The growth status of the case will be assessed
Change in knee height 1 year The growth status of the case will be assessed
gender, age , disease history checklist 1 year
- Secondary Outcome Measures
Name Time Method