The effect of family-centered empowerment model on family function and care burden of primary caregivers of children with favism

Not Applicable

Conditions: Glocos 6 phospat dehydrogenaz enzim definenshe.
Anaemia due to glucose-6-phosphate dehydrogenase [G6PD] deficiency
D55.0

Registration Number: IRCT20190618043936N1

Lead Sponsor: Birjand University of Medical Sciences

Brief Summary: Not available

Detailed Description: Not available

Recruitment & Eligibility

Status: Complete

Sex: All

Target Recruitment: 60

Inclusion Criteria

Completion of written consent form to participate in the study
Having a child with glucose-6-phosphate dehydrogenase deficiency ages 6 to 14 years
Literacy and ability to complete the questionnaire in the main caregiver
The main caregiver is not a member of the medical and nursing group
Lack of chronic disease in other family members
There is no history of formal education about favic disease before the study
The ability to speak and listen to the patient and the main caregiver
Being responsible for the maximum daily care of the child
Having the right to decide on the prevention and treatment of childhood illness

Exclusion Criteria

Not willing to continue participating in the scheme
Absence for any reason two consecutive sessions that can not attend meetings
Not available for communicating and informing sessions
To create a special event affecting the quality of life and the specific mental illness in the main caregiver

Study & Design

Study Type: interventional

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Care load score in Zarit questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: caring-burden-inventory-CBI-Zarit.;McMaster family functioning score in the questionnaire. Timepoint: Before the intervention and a month later. Method of measurement: Family Assessment Device (FAD) McMaster.

Secondary Outcome Measures