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Clinical Trials/NL-OMON31780
NL-OMON31780
Completed
Not Applicable

Accelerometry as a Measure of Physical Activity and Inactivity in Children with Chronic Disease - Accelerometry in Chronic Illness

niversitair Medisch Centrum Utrecht0 sites80 target enrollmentTBD

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
chronic illness
Sponsor
niversitair Medisch Centrum Utrecht
Enrollment
80
Status
Completed
Last Updated
last year

Overview

Brief Summary

No summary available.

Registry
who.int
Start Date
TBD
End Date
TBD
Last Updated
last year
Study Type
Observational non invasive

Investigators

Sponsor
niversitair Medisch Centrum Utrecht

Eligibility Criteria

Inclusion Criteria

  • Age 8 to 18 years.
  • Both prepubescent and pubescent children will be enrolled.
  • Healthy controls \- will include any child without a history of disease or disability who are able to cooperate with the testing procedures.
  • Diagnosis of Juvenile Idiopathic Arthritis (JIA) \- based on the ILAR criteria (56\) OR
  • Diagnosis of Severe Hemophilia A or B (\< 1% clotting factor activity) OR
  • Diagnosis of Juvenile Dermatomyositis (JDM) \- based on the Bohan \& Peter criteria OR
  • Diagnosis of dystrophinopathy (Beckers, Duchenne\*s) or other inherited muscle disease OR
  • Diagnosis of Cerebral Palsy (Gross Motor Function Classification system Levels I or II) (57\) OR
  • Diagnosis of Cystic Fibrosis OR
  • Diagnosis of congenital heart disease (CHD) and Fontan procedure or tetralogy of Fallot repair.

Exclusion Criteria

  • Medical status that will not allow exercise testing
  • Medications that interfere with heart rate response to exercise
  • Non\-ambulation: patients who are unable to ambulate
  • Insufficient understanding of the Dutch language in both children and parents
  • See also page 14 of the protocol

Outcomes

Primary Outcomes

Not specified

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