Daily activities, participation, quality of life, health care usage and satisfaction in patients with Obstetric Brachial Plexus Injuries

Completed

• Conditions: Obstetrisch Plexus Brachialis Letsel; Obstetric Brachial Plexus Injuries; Erb's paresis

• Registration Number: NL-OMON40968
• Lead Sponsor: eids Universitair Medisch Centrum

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Last Update Posted: 23 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: Not specified
• Target Recruitment: 1250

Inclusion Criteria

Obstetric Brachial Plexus Injury

Exclusion Criteria

Unable to read and write in Dutch

Study & Design

• Study Type: Observational non invasive
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>Socio-demographic status (age, gender, dexterity, education, work etc.),<br /><br>relevant disease specific questions (not present in existing questionnaires)<br /><br>regarding functional abilities, participation, the use of assistive devices,<br /><br>cosmetics, impact on familiy, health care utilization and satisfaction with<br /><br>care (OBPI GAP-C), Upper extremity functioning (ABILHAND-Kids, HUH, PODCI-NL,<br /><br>DASH-DLV and MHOQ-DLV), Quality of Life (TAPQOL, TACQOL, TAAQOL, DISABKIDS,<br /><br>SF-36), Physical Activity (SQUASH, AQUA), Participation (IPA, USER-P) and<br /><br>Transition from childhood into adulthood (Rotterdam Transition Profile).</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>N.a.</p><br>