Development and testing of a health related quality of life instrument for non-ambulatory adults with severe disabilities
- Conditions
- health related quality of life of non-ambulatory adults with severe disabilities e.g. cerebral palsy
- Registration Number
- NL-OMON21614
- Lead Sponsor
- RUG
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 50
Inclusion Criteria
Adult primary caregiver (parent or direct support person) of a person:
•with severe disabilities e.g. cerebral palsy, syndromes, profound intellectual and multiple disabilities (
Exclusion Criteria
Exclusion criteria includes the presence of a progressive neurological disorder or severe concurrent illness or disease in the non-ambulatory adult, not typically associated with the underlying disability
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Scores of the health-related quality of life instrument that is tested for its psychometric evaluation
- Secondary Outcome Measures
Name Time Method not applicable