Perspectives on Bone Marrow Donors Who Donate for Their Parent
Completed
- Conditions
- Bone Marrow Transplant
- Interventions
- Other: Semi-structured Interview
- Registration Number
- NCT03758911
- Brief Summary
The purpose of this pilot study is to explore the role of family function on decision-making for bone marrow donors who donated for their parent, and to assess the unique supportive care needs of these participants. Semi-structured interviews were conducted with participants to identify overarching themes of the donation experience.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 16
Inclusion Criteria
- Donated bone marrow or peripheral blood stem cells for their parent in the past 1-6 months
- Willing to participate in mandatory audio recorded telephone interview
- Able to participate in interview without assistance
- Must be English speaking
- Transplant recipient (parent) must be living
Exclusion Criteria
- Unable to provide oral consent for participation (for minors- unable to obtain parental consent and/or oral assent from child for participation)
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description bone marrow/blood stem cell donors Semi-structured Interview Participants underwent a one time semi-structured telephone interview to understand the perspectives of bone marrow/stem cell donors experience, including how family dynamics impacted participants' decision to donate and identifying unique supportive care needs of bone marrow/stem cell donors.
- Primary Outcome Measures
Name Time Method Themes influencing donors' decision-making as assessed by words used during interview responses Day 1 Words/terms are extracted from interviewer responses and associated to key themes that influence participant's decision-making process. A codebook is used to reference these words/terms
- Secondary Outcome Measures
Name Time Method