Understanding Family Refusal

Completed

• Conditions: Brain Death; Renal Failure
• Interventions: Other: Health sciences survey

• Registration Number: NCT04303624
• Lead Sponsor: Yale-NUS College

Brief Summary

The investigators plan a secondary data analysis of an existing dataset to examine how individual decision-making differs from family decision-making in organ donation.

Detailed Description

Not available

Study Timeline

• Study Start: 2016-09-01
• Primary Completion: 2019-03-31
• Study Completion: 2019-03-31
• Status Verified: 2020-03
• Study First Submitted: 2020-03-08
• Study First Submitted QC: 2020-03-08
• Last Update Submitted: 2020-03-08
• Study First Posted: 2020-03-11
• Last Update Posted: 2020-03-11

Recruitment & Eligibility

• Status: COMPLETED
• Sex: Female
• Target Recruitment: 1007

Inclusion Criteria

• Citizens or permanent residents of Singapore
• Above 21

Exclusion Criteria

• Below 21

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Arm && Interventions

Group	Intervention	Description
Community sample	Health sciences survey	Representative sample of the Singapore population

Primary Outcome Measures

Name	Time	Method
Willingness to donate	Single measurement (time of taking the survey)	Participants indicated their willingness to donate their own organs and those of a close family member

Secondary Outcome Measures

Name	Time	Method
Confidence in family decision-making	Single measurement (time of taking the survey)	Participants rated how confident they were that - upon their family member's death - they would respect their family member's views regarding donation rated using 5-point scales anchored on one end with 1="Not confident at all" and 5="Absolutely confident").