Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Recruiting

• Conditions: Desmoplastic Small Round Cell Tumor

• Registration Number: NCT04690374
• Lead Sponsor: Memorial Sloan Kettering Cancer Center

Brief Summary

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Detailed Description

Not available

Study Timeline

• Study Start: 2020-12-22
• Study First Submitted: 2020-12-28
• Study First Submitted QC: 2020-12-28
• Study First Posted: 2020-12-30
• Status Verified: 2025-01
• Last Update Submitted: 2025-01-09
• Last Update Posted: 2025-01-10
• Primary Completion: 2027-12
• Study Completion: 2027-12

Recruitment & Eligibility

• Status: RECRUITING
• Sex: All
• Target Recruitment: 250

Inclusion Criteria

• Participants must have a diagnosis of desmoplastic small round cell tumor
• Participants may be of any age as long as the appropriate consent and assent may be obtained
• Willing to provide historical and longitudinal clinical data

Exclusion Criteria

• Participant unwilling to provide consent or share historical and longitudinal clinical data

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor	7 years	The aim of this study is the collection of data.

Trial Locations

Locations (1)

Memorial Sloan Kettering Cancer Center (All Protocol Activities); 🇺🇸 New York, New York, United States