Empowering Cancer Survivors Through Information Technology
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 53
- 试验地点
- 2
- 主要终点
- Cancer Knowledge Survey
研究概览
简要总结
This is a randomized controlled trial of a web-based informational intervention (UMFollowUp) for adolescent and young adult survivors of childhood cancer to improve cancer knowledge and psychosocial functioning.
详细描述
Individuals randomly assigned to the control group will receive standard of care for the duration of their participation. This means they will continue to receive information regarding their diagnosis, treatments and ongoing health needs from their provider (no access to website).
Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a secure, HIPAA-compliant website.
All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months later to determine the impact of the web-based intervention.
研究设计
- 研究类型
- Interventional
- 分配方式
- Randomized
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 15 Years 至 28 Years（Child, Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •History of diagnosis of hematologic malignancy or malignant neoplasm, and in disease free remission at time of recruitment.
- •Must be English-speaking and have access to a computer with internet access, and must have completed treatment at University of Minnesota Medical Center-Fairview for cancer.
排除标准
- •Individual with significant visual impairments and neurologic/cognitive difficulties which limit their ability to see and under our outcome questionnaires or website content will be excluded from participation.
结局指标
主要结局
Cancer Knowledge Survey
时间窗: Time of Enrollment and 9 Months Later
Measure of patient reported knowledge of their cancer diagnosis, history and treatments.
次要结局
- State Trait Anxiety Inventory(Time of Enrollment and 9 Months Later)
- Cancer Rehabilitation Evaluation System(Time of Enrollment and 9 Months Later)
- Herth Hope Index(Time of Enrollment and 9 Months Later)
- SF-36 Questionnaire(Time of Enrollment and 9 Months Later)
- Multidimensional Scale of Perceived Social Support(Time of Enrollment and 9 Months Later)
- Health Locus of Control Scale(Time of Enrollment and 9 Months Later)