DRKS00023096
Completed
未知
Development and evaluationof an interdisciplinary information and training program for children/young peoplewith Differences of Sex Development - Empower-DSD
ConditionsE25Q96Q97Q98Q99Q50-Q56Adrenogenital disordersTurner syndromeOther sex chromosome abnormalities, female phenotype, not elsewhere classifiedOther sex chromosome abnormalities, male phenotype, not elsewhere classifiedOther chromosome abnormalities, not elsewhere classifiedCongenital malformations of genital organs
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- E25
- Sponsor
- Charité Universitätsmedizin Berlin
- Enrollment
- 634
- Status
- Completed
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Patients with Turner Syndrome, Klinefelter Syndrome, XX\-/XY\-DSD or Congenital adrenal hyperplasia (CAH); diagnosis confirmation by chromosome analysis, genetic test result, laboratory examination or clinical examination; children between 6\-13 years; adolescents/young adults between 14\-24 years; Parents/caregivers of concerned children/teenagers or young adults; professionals who conducted the training; peers who participated in the training as peer counselors or who have participated in the development of the training program; the informed consent of concerned persons (6 years and older) and parents/caregivers, professionals and peers is available.
Exclusion Criteria
- •no informed consent of participants ( patients, parents/caregivers, professionals, peers); participation in other studies dealing with training on DSD diagnosis, children between the ages of 6 and 7 without the cognitive development to participate in the educational programme
Outcomes
Primary Outcomes
Not specified
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