DRKS00023096已完成未知
Development and evaluationof an interdisciplinary information and training program for children/young peoplewith Differences of Sex Development - Empower-DSD
适应症
试验速览
- 阶段
- 未知
- 状态
- 已完成
- 入组人数
- 634
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Interventional
- 分配方式
- N/a: Single Arm Study
- 盲法
- Open (masking not used)
入排标准
- 年龄范围
- 6 Years 至 one（—）
- 性别
- All
入选标准
- •Patients with Turner Syndrome, Klinefelter Syndrome, XX-/XY-DSD or Congenital adrenal hyperplasia (CAH); diagnosis confirmation by chromosome analysis, genetic test result, laboratory examination or clinical examination; children between 6-13 years; adolescents/young adults between 14-24 years; Parents/caregivers of concerned children/teenagers or young adults; professionals who conducted the training; peers who participated in the training as peer counselors or who have participated in the development of the training program; the informed consent of concerned persons (6 years and older) and parents/caregivers, professionals and peers is available.
排除标准
- •no informed consent of participants ( patients, parents/caregivers, professionals, peers); participation in other studies dealing with training on DSD diagnosis, children between the ages of 6 and 7 without the cognitive development to participate in the educational programme
研究者
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