Understanding the Needs of Informal Caregivers
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 69
- 试验地点
- 2
- 主要终点
- PEG: Three Item Pain Measure
研究概览
简要总结
The "Understanding Needs" Project is designed to gain an understanding of the needs of informal caregivers. Researchers have designed a survey to highlight activities of daily living involved in the caregiving role, pain related to caregiver, and potential services desired. The initial phase of the study will consist of a focus group of informal caregivers to discuss current needs. The survey will then be refined based on knowledge gained from the focus group, and feedback from expert researchers. The refined survey will then be disseminated to caregivers throughout the country.
Please click on the following anonymous link to participate: https://chhscolostate.co1.qualtrics.com/jfe/form/SV_54j83BQSItMuoUB
详细描述
The "Understanding Needs" Project highlights the needs of informal caregivers. An informal caregiver is defined as a person who regularly provides unpaid care to another adult. The survey will ask about pain intensity, pain interference, and relation of pain to the caregiving role. The survey will also address which activities the caregiver assists with, and activities now lacking since becoming a caregiver. One focus group will be completed to refine the contents of the survey prior to dissemination. The results will be analyzed by an occupational therapist, with a focus on how pain may connect to assistance with daily living activities provided to the care recipient. The needs of caregivers within the community will be compiled to inform future involvement in remediation of needs.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •At least 18 years old
- •Informal caregivers (unpaid)
- •have been a caregiver for > 6 months
- •provide at least 8 hours of care/week
- •able to read english
排除标准
- •Less than 18 years old
- •paid caregivers
- •not able to read english
- •Caregiver or care recipient has a terminal diagnosis with a life expectancy of less than one year
研究组 & 干预措施
Caregivers for "Understanding Needs"
5-8 informal caregiver participants in focus group will discuss current perceived needs.
Up to 150 participants will complete the "Understanding Needs" survey
干预措施: Understanding Needs Survey (Other)
结局指标
主要结局
PEG: Three Item Pain Measure
时间窗: Self-report, up to one year for analyses when all surveys are returned
A self-rating of pain intensity, pain interference in enjoyment of life, and pain interference in general activity
次要结局
未报告次要终点
研究者
Arlene Schmid
Prinicipal Investigator
Colorado State University