Euthanasia and physician assisted suicide in Huntington's disease, an investigation amongst patients and physicians.
Recruiting
- Conditions
- chorea of HuntingtonHuntington's disease10028037
- Registration Number
- NL-OMON36108
- Lead Sponsor
- eids Universitair Medisch Centrum
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- Not specified
- Target Recruitment
- 300
Inclusion Criteria
Known gene carrier of Huntington's disease (HD), pre-manifest or manifest.
Over the age of 18.
Partner of family member of a gene carrier available
Patients have to be able to communicate, written or oral
Exclusion Criteria
Decline informed consent
Gene carriers suffering from severe depression.
Patients or gene carriers who are suicidal
Patients who have an addiction to alcohol or drugs, which changes their judgement
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <p>Evaluation of thoughts about and use of euthanasia or physician assisted<br /><br>suicide in The Netherlands and surrounding European countries with physicians.<br /><br>Evaluation of thoughts about and use of euthanasia or physician assisted<br /><br>suicide in The Netherlands and surrounding European countries with patients</p><br>
- Secondary Outcome Measures
Name Time Method <p>When investigating this subject, we must consider the law. Are there any legal<br /><br>rules on the subject to which a physician must comply? Can we see a change in<br /><br>attitude among politicians and changes in the law regarding the subject of<br /><br>euthanasia?</p><br>