Suicidality in Huntington*s disease - a qualitative add-on study
- Conditions
- 1002803710042460thoughts of suicide and suicide attempt (in Huntington's disease)10083624
- Registration Number
- NL-OMON38152
- Lead Sponsor
- eids Universitair Medisch Centrum
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- Not specified
- Target Recruitment
- 39
Inclusion criteria for HD mutation carriers
- Current and/or previous suicidal ideation or previous suicide attempt
- Either participated in the PsychHD study and gave consent to be contacted for future research or visits the Huntington outpatient clinic during the inclusion period
- Provides informed consent;Inclusion criteria for partners of HD mutation carriers
- Aware of current and/or previous suicidality experiences of his/her partner
- Mutation carrier gives consent to approach the partner
- Provides informed consent
Exclusion criteria for HD mutation carriers
- Lack of verbal or cognitive capacities to talk about suicidality experiences as shown during telephone contact or home-visit;Exclusion criteria for partners of HD mutation carriers
- No good knowledge on Dutch language
Study & Design
- Study Type
- Observational invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <p>Focus group interviews will be carried out to describe and understand<br /><br>perceptions, interpretations, and beliefs of HD mutation carriers and their<br /><br>partners on experiencing and coping with suicidality. </p><br>
- Secondary Outcome Measures
Name Time Method <p>Not applicable</p><br>