The National Amyotrophic Lateral Sclerosis Registry
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Amyotrophic Lateral Sclerosis
- Sponsor
- Centers for Disease Control and Prevention
- Enrollment
- 30000
- Locations
- 2
- Primary Endpoint
- The National Amyotrophic Lateral Sclerosis (ALS) Registry
- Status
- Recruiting
- Last Updated
- 3 days ago
Overview
Brief Summary
The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
Detailed Description
The National ALS Registry's Research Notification System allows person with ALS to participate in clinical trials.
Investigators
Eligibility Criteria
Inclusion Criteria
- •\- U.S. citizens 18 years of age or older
Exclusion Criteria
- Not provided
Outcomes
Primary Outcomes
The National Amyotrophic Lateral Sclerosis (ALS) Registry
Time Frame: 1 year
To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.
Secondary Outcomes
- Risk factors of ALS(1 year)