NCT01955369已完成不适用
Amyotrophic Lateral Sclerosis Registry Rhineland-Palatinate
Klinikum Ludwigshafen1 个研究点 分布在 1 个国家目标入组 200 人开始时间: 2009年10月最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 200
- 试验地点
- 1
- 主要终点
- Death
研究概览
简要总结
There is a lack of prospective and population-based epidemiological data on amyotrophic lateral sclerosis in Germany so far. The purpose of this registry is to investigate the incidence, course and phenotypic variety of ALS in Rhineland-Palatinate, a South-West German state of about 4 million inhabitants.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •diagnosis of amyotrophic lateral sclerosis according to revised El Escorial criteria
- •minimum of 18 years
- •minimum of 6 months of residency in Rhinelnad-Palatinate
排除标准
- •patients below 18 years
- •ALS patients outside Rhineland-Palatinate
结局指标
主要结局
Death
时间窗: an average of 3 years
death of participating ALS patients independent of the cause of death
次要结局
- Tracheostomy(an average of 3 years)
研究者
Joachim Wolf
Senior neurologist of the Dept. of Neurology
Klinikum Ludwigshafen
研究点 (1)
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