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Effect of propranolol in the retinal tumours of patients with von Hippel-Lindau disease

Phase 1
Conditions
VON HIPPEL-LINDAU DISEASE
Therapeutic area: Diseases [C] - Congenital, Hereditary, and Neonatal Diseases and Abnormalities [C16]
Registration Number
EUCTR2014-003671-30-ES
Lead Sponsor
ALIANZA ESPAÑOLA DE FAMILIAS DE VON HIPPEL-LINDA
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
ot Recruiting
Sex
All
Target Recruitment
Not specified
Inclusion Criteria

PATIENTS DIAGNOSED OF VON HIPPEL-LINDAU DISEASE AND RETINAL HEMANGIOBLASTOMAS, THAT IN ADDITION:
- AT LEAST ONE PAPILLARY OR JUXTAPAPILLARY HB, OR
- PERIPHERICAL HB, WHO HAD REJECTED ANOTHER TREATMENTS
Are the trial subjects under 18? yes
Number of subjects for this age range: 1
F.1.2 Adults (18-64 years) yes
F.1.2.1 Number of subjects for this age range 9
F.1.3 Elderly (>=65 years) no
F.1.3.1 Number of subjects for this age range

Exclusion Criteria

CONTRAINDICATIONS TO TAKE PROPRANOLOL

Study & Design

Study Type
Interventional clinical trial of medicinal product
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Main Objective: TO EVALUATE THE EFFECTIVENESS OF PROPRANOLOL IN CONTROLLING THE GROWTH OF PAPILLARY AND JUXTAPAPILLARY RETINAL HEMANGIOBLASTOMAS (HB);Secondary Objective: TO DETERMINE IF PROPRANOLOL HAS A POSITIVE EFFECT IN CONTROLLING THE GROWTH OF CENTRAL NERVOUS SYSTEM HEMANGIOBLASTOMAS;Primary end point(s): NUMBER AND SIZE OF THE RETINAL HEMANGIOBLASTOMAS;Timepoint(s) of evaluation of this end point: EVALUATION AT 1-3-6-9-12 MONTHS
Secondary Outcome Measures
NameTimeMethod
Secondary end point(s): NUMBER AND SIZE OF THE CENTRAL NERVOUS SYSTEM HEMANGIOBLASTOMAS;Timepoint(s) of evaluation of this end point: 12 MONTHS SINCE THE START OF TREATMENT
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