Growing up with the Young Endocrine Support System (YESS!): innovative e-technology to improve transition from paediatric to adult care.

Conditions: chronic hormone disease
endocrine disorder
10052547

Registration Number: NL-OMON48266

Lead Sponsor: Erasmus MC, Universitair Medisch Centrum Rotterdam

Brief Summary: Not available

Detailed Description: Not available

Recruitment & Eligibility

Status: Pending

Sex: Not specified

Target Recruitment: 40

Inclusion Criteria

- Aged 15 to 20 years old.
- Diagnosed with congenital adrenal hyperplasia, hypogonadotropic hypogonadism,
Turner Syndrome, Klinefelter syndrome, growth hormone deficiency, combined
pituitary hormone deficiency, Androgen insensitivity syndrome, thyroid
dysgenesis or Addison's disease

Exclusion Criteria

-Lack of a mobile phone or tablet.
-Mental disability or language barrier leading to inability to use the YESS!
game or control game.

Study & Design

Study Type: Interventional

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>To investigate whether there is a difference in the Self-management and<br /><br>Transition to Adulthood with Rx (treatment) (STARx) questionnaire score at t=12<br /><br>months minus the score at t=0 in group YT compared to group O.</p><br>

Secondary Outcome Measures

Name	Time	Method
<p>-To investigate whether there is a difference in the STARx questionnaire score<br /><br>6 and 12 months after inclusion minus the score at t=0 in group T compared to<br /><br>group O.<br /><br>-To investigate whether there is a difference in the Self-management and<br /><br>Transition to Adulthood with Rx (treatment) (STARx) questionnaire score at 12<br /><br>months minus the score at t=0 in group YT compared to group GT and -T.<br /><br>-To investigate whether there is a difference in the Self-management and<br /><br>Transition to Adulthood with Rx (treatment) (STARx) questionnaire score at t=6<br /><br>months minus the score at t=0 in group YT compared to group GT, -T and -O.<br /><br>-To investigate whether there is a difference in the drop-out rate to the adult<br /><br>outpatient clinic in group YT compared to group GT, -T and -O during the first<br /><br>year after the last visit to the paediatric endocrinologist (i.e. one year<br /><br>after the moment of transfer, t=24 m). </p><br>