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临床试验/NL-OMON39851
NL-OMON39851已完成不适用

Arthropathy in patients with congenital severe and moderate severe von Willebrand disease - Willebrand arthropathy study (WAS)

niversitair Medisch Centrum Utrecht0 个研究点目标入组 100 人开始时间: 待定最近更新:
适应症

试验速览

阶段
不适用
状态
已完成
发起方
入组人数
100

研究概览

简要总结

暂无简介。

研究设计

研究类型
Observational

入排标准

年龄范围
2 至 99(—)

入选标准

  • Patients with moderate or severe VWD who participated in the *Willebrand in Nederland* (WiN) study and who reported treatment with coagulation factor or desmopressin for 1 or more joint bleeds (patients)
  • Patients with moderate or severe VWD who participated in the *Willebrand in Nederland* (WiN) study and did not report treatment with coagulation factor or desmopressine for 1 or more joint bleeds (controls)
  • Patients with moderate or severe VWD who are currently treated at a haemophilia treatment centre in the Netherlands with or without a history of coagulation factor or desmopressin for 1 or more joint bleeds
  • Comprehension of the Dutch written and spoken language

排除标准

  • Inability of the patient or the patients parents to give informed consent
  • Active joint pathology (i.e. recent episode of joint haemorrhage)
  • Restricted motion of an ankle, knee or elbow joint for another medical reason
  • No medical file available
  • Age 4 years or younger

研究者

发起方
niversitair Medisch Centrum Utrecht

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