NL-OMON39851已完成不适用
Arthropathy in patients with congenital severe and moderate severe von Willebrand disease - Willebrand arthropathy study (WAS)
niversitair Medisch Centrum Utrecht0 个研究点目标入组 100 人开始时间: 待定最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 100
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 2 至 99(—)
入选标准
- •Patients with moderate or severe VWD who participated in the *Willebrand in Nederland* (WiN) study and who reported treatment with coagulation factor or desmopressin for 1 or more joint bleeds (patients)
- •Patients with moderate or severe VWD who participated in the *Willebrand in Nederland* (WiN) study and did not report treatment with coagulation factor or desmopressine for 1 or more joint bleeds (controls)
- •Patients with moderate or severe VWD who are currently treated at a haemophilia treatment centre in the Netherlands with or without a history of coagulation factor or desmopressin for 1 or more joint bleeds
- •Comprehension of the Dutch written and spoken language
排除标准
- •Inability of the patient or the patients parents to give informed consent
- •Active joint pathology (i.e. recent episode of joint haemorrhage)
- •Restricted motion of an ankle, knee or elbow joint for another medical reason
- •No medical file available
- •Age 4 years or younger
研究者
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