Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study
Completed
- Conditions
- Transition Care
- Registration Number
- NCT02617030
- Lead Sponsor
- Assistance Publique - Hôpitaux de Paris
- Brief Summary
Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 390
Inclusion Criteria
- Youth with chronic diseases after transfer to adult care
- Parents or guardians of these youth.
- Professionals caregivers from pediatric services and adult services involved in transition
Exclusion Criteria
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Agreement rate for each component of the transition program defined 2 years
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (1)
Robert Debré Hospital
🇫🇷Paris, France