Co-producing a Hospice Intimacy Support Toolkit to Enable Intimacy Needs Conversations in England
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 发起方
- 入组人数
- 794
- 主要终点
- Priorities for an intimacy support toolkit
研究概览
简要总结
People receiving hospice care may experience concerns about intimacy, closeness and physical affection that can affect their quality of life and wellbeing. However, healthcare professionals often report feeling uncertain about how to initiate or respond to conversations about intimacy needs. This can result in unmet needs and missed opportunities to provide holistic, person-centred care.
The aim of the IN-TALK study is to co-produce a hospice intimacy support toolkit to support healthcare professionals in initiating and responding to conversations about intimacy needs with people receiving hospice care in England.
This prospective mixed methods observational study uses Experience-Based Co-Design (EBCD) as its co-production methodology to develop a hospice intimacy support toolkit. Findings from the surveys will inform a series of co-production workshops involving hospice service users and healthcare professionals. Together, participants will co-produce the content and design of a hospice intimacy support toolkit to support person-centred care in hospice services across England.
详细描述
IN-TALK is a 24-month prospective mixed methods observational study which uses Experience-Based Co-Design (EBCD) as its co-production methodology to develop a hospice intimacy support toolkit. The study is funded by the National Institute for Health and Care Research (NIHR) Research for Patient Benefit (RfPB) Programme (Grant Reference NIHR209649).
The study aims to co-produce an evidence-informed hospice intimacy support toolkit to support healthcare professionals in initiating and responding to conversations about intimacy needs with people receiving hospice care in England.
The study comprises two interconnected work packages. Cross-sectional surveys of hospice service users and healthcare professionals will generate evidence to inform Experience-Based Co-Design (EBCD) workshops, through which participants will co-produce a hospice intimacy support toolkit.
Work Package 1 will undertake cross-sectional surveys of hospice healthcare professionals and hospice service users in England. The surveys will explore experiences of intimacy needs conversations, perceived barriers and facilitators, confidence, education and training needs, and priorities for improving support within hospice care. Survey findings will be analysed using descriptive statistics and qualitative analysis of free-text responses where appropriate.
Work Package 2 will use Experience-Based Co-Design (EBCD) methodology to bring together hospice service users and healthcare professionals in a series of co-production workshops. Workshop participants will review the findings from Work Package 1, identify priorities for improvement and collaboratively design the content, format and implementation considerations for a hospice intimacy support toolkit. Workshops will be delivered in two face-to-face locations and one online workshop to maximise accessibility and participation.
研究设计
- 研究类型
- Observational
- 观察模型
- Other
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Hospice service users: Aged 18 years or over. Hospice service users: Patients, partners, loved ones and bereaved people who are receiving, or have received, care or support services from hospices in England.
- •Hospice service users: Able to understand and communicate in spoken and written English, independently or with the support of an interpreter.
- •Hospice service users: Able and willing to provide informed consent. Healthcare professionals: Registered or non-registered healthcare professionals currently working within hospices in England involved in patient care and support.
- •Healthcare professionals: Aged 18 years or over. Healthcare professionals: Able and willing to provide informed consent.
排除标准
- •Hospice service users: Cognitive impairment that impedes communication. Healthcare professionals: Registered and non-registered Healthcare professionals currently working outside of hospices; and England.
结局指标
主要结局
Priorities for an intimacy support toolkit
时间窗: Up to 24 months
Identification of priorities for the content, format and implementation of a hospice intimacy support toolkit through analysis of survey findings and Experience-Based Co-Design (EBCD) workshop discussions involving hospice service users and healthcare professionals.
次要结局
- Hospice service users' intimacy support needs and priorities(During the cross-sectional survey data collection period (anticipated November 2026 to March 2027).)
- Healthcare professionals' confidence and educational needs(During the cross-sectional survey data collection period (anticipated April 2027 to September 2027).)