Primary Palliative Care in General Practice

• Conditions: Z51.5; Severe progressive conditions at the end of life; Palliative care

• Registration Number: DRKS00011821
• Lead Sponsor: Medizinische Hochschule Hannover

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2017-12-04
• Results First Posted: 2019-01-09
• Study Completion: 2022-01-31
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 166

Inclusion Criteria

General Practices: according to the principles of Theoretical Sampling, general practices will be selected along different contrasting lines (e.g. urban - rural; single - joint practice)

Patients: patients in general practice in need of palliative care, who are able to give informed consent and whose general condition will allow for an interview

Relatives: patients' relatives who are able to give informed consent

Exclusion Criteria

Patients whose general condition does not allow for an interview

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Successful integration of primary palliative care in general practice (organisational ethnographic field research following the theoretical model of the Normalization Process Theory; NoMAD (assessment Instrument for the Evaluation of the implementation of complex interventions))

Secondary Outcome Measures

Name	Time	Method
Place of death; hospital admissions; prescriptions and therapies (clinical routine data from medical charts); physical, psychological and<br>emotional well-being, as well as quality of treatments and care coordination (Palliative Outcome Scale POS; Quality of Dying and Death Questionnaire; Quality of End of Life Care Questionnaire; semi-structured interviews with patients and relatives); details in Table 2, p. 15 in the attached study protocol