eurological Outpatient Palliative Medicine
Recruiting
- Conditions
- People with life-threatening neurological diseases and palliative care needs
- Registration Number
- DRKS00030778
- Lead Sponsor
- Interdisziplinäres Palliativzentrum, Evangelisches Krankenhaus Oldenburg
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 200
Inclusion Criteria
1. Presence of a life-threatening neuromuscular disease (e.g. motor neuron disease or muscular dystrophy)
2. Presence of severe central nervous system disease with palliative treatment needs according to the WHO definition of palliative care
Exclusion Criteria
Patients younger than 18 years of age and patients who do not have a palliative treatment need
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method The outpatient clientele of the Interdisciplinary Palliative Center and the Outpatient Clinic for Amyotrophic Lateral Sclerosis (ALS) and severe neuromuscular disease is aimed to be described.
- Secondary Outcome Measures
Name Time Method The clinical service spectrum of the neuropalliative outpatient clinic will be surveyed and the needs of the patients will be shown.