Evaluation of specialised outpatient palliative care using the example of Hesse (Germany)

• Conditions: patients with life-limiting disease at the end-of-life with no matter of the underlying disease,

• Registration Number: DRKS00012421
• Lead Sponsor: Fachverband SAPV Hessen e.V.

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2017-05-19
• Study Completion: 2020-02-20
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Complete
• Sex: All
• Target Recruitment: 399

Inclusion Criteria

Further definition of the term ‘quality of care’ and development of the set of tools:
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Patients, who 1.) are included in specialized outpatient palliative care, regardless of diagnosis 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study 5.) have the linguistic proficiency to participate in an interview 6.) have the communication skills to actively communicate.
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Relatives 1.) who agreed to participate in the study, 2.) the patient himself/herself, or an official representative responsible for the patient's health affairs, agreed to interviewing the relative 3.) are able to take part in an interview in German language.
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Health professionals, who 1.) collaborate with or work in a specialised outpatient palliative care-team; 2.) agreed to participate in the study; 3.) are able to take part in an interview in German language

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Pilot Phase and Implementation of the set of tools:
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Patients, who 1.) are included in specialized outpatient palliative care, regardless of diagnosis 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study and agreed to the usage of their data for research purposes 5.) are fluent in German and therefore able to complete a questionnaire and can follow the course of an interview
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Relatives, 1.) of a patient who is included in specialized outpatient palliative care 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study and agreed to the usage of their data for research purposes 5.) are fluent in German and therefore able to complete a questionnaire and can follow the course of an interview
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Health professionals (SAPV-members) who 1.) are currently working in a palliative care team located in Hesse, regardless of profession 2.) agreed to participate in the study 3.) are fluent in German language

Exclusion Criteria

Further definition of the term 'quality of care' and development of the set of tools:
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Patients are excluded, who 1). are not able to give study consent; 2.) did not agree to participate in the study; 3.) are not or only partially able to follow the course of the interview.

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Pilot phase and implementation of the set of tools:
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Patients who 1.) are not able to consent, 2.) did not agree to participate in the study or did not agree to the usage of their data for quality management and research purposes 3.) are not able to participate due to life situation, e.g. a supplementary survey for research purposes would worsen health and condition of the patient. Therefore, an SAPV-professional will assess the situation before starting a survey. There are no criteria for this kind of assessment, it depends on the assessment of the SAPV- members.

Study & Design

• Study Type: observational
• Study Design: Not specified