Treatment Preference in Patients with Paroxysmal Nocturnal Hemoglobinuria
Not Applicable
Suspended
- Conditions
- Paroxysmal Nocturnal Hemoglobinuria
- Registration Number
- JPRN-UMIN000051639
- Lead Sponsor
- Chugai Pharmaceutical Co., Ltd.
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Suspended
- Sex
- All
- Target Recruitment
- 140
Inclusion Criteria
Not provided
Exclusion Criteria
Subjects who meet following criteria will be excluded from the study. (1) Have difficulty in obtaining consent or conducting this study due to lack of Japanese language skills. (2) Unable to participate in the survey in person.
Study & Design
- Study Type
- Others,meta-analysis etc
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <Qualitative interview survey> Relationship between preferences and background factors of treatment choice in patients with PNH. <Quantitative questionnaire survey> Relative preference for each attribute of PNH treatment (Candidate factors of treatment selection in the quantitative questionnaire survey). Relative preference for each level of each attribute of PNH treatment.
- Secondary Outcome Measures
Name Time Method <Qualitative interview survey> PNH patients' subjective experience of symptoms and treatment burden and the importance of their impact on daily life. <Quantitative questionnaire survey> Relative preference for each attribute of PNH treatment by patient background. Relative preference for each level of each attribute of PNH treatment by patient background.