Resilience Models in Adolescence and Youth With Cancer in Taiwan

Completed

• Conditions: Hope; Resilience; Childhood Cancer; Coping Behavior

• Registration Number: NCT06179914
• Lead Sponsor: Kaohsiung Medical University Chung-Ho Memorial Hospital

Brief Summary

Validation of Resilience Models about Cancer in Adolescence and Youth in Taiwan

Detailed Description

This study uses the disease resilience model as a framework to explore the relationship between physical, mental, spiritual, and social aspects of resilience in adolescents with cancer and to verify the resilience model. It is expected that the research results will serve as a reference for designing nursing interventions in the future and develop local Resilience model to improve quality of care.

Study Timeline

• Study Start: 2020-11-02
• Primary Completion: 2022-09-26
• Study Completion: 2022-09-26
• Status Verified: 2023-11
• Study First Submitted: 2023-11-23
• Study First Submitted QC: 2023-12-12
• Last Update Submitted: 2023-12-12
• Study First Posted: 2023-12-22
• Last Update Posted: 2023-12-22

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 223

Inclusion Criteria

Not provided

Exclusion Criteria

• Diagnosis of mental problems (developmental delay or psychiatric illness)
• At the end of life

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Herth Hope Index (HHI)	1 year	Herth Hope Index (HHI) has 12 items. The12 items developed by Herth (1992) measures adults hope and contains three factors: cognitive-temporal (positive and desired outcome in the future), affective-behavioral (a feeling of confident with the reality-based goals and desirable outcomes), and affiliative-contextual (interconnect between self and others)(Herth, 1992). A higher score indicates a higher degree of hope.
Resilience in Illness Scale (HARS)	1 year	HARS is a single factor scale, consisting of 13 items that measure how participants feel or think about managing their health since diagnosis. The internal consistency reliability (0.84 to 0.86) and content validity have been tested by previous qualitative research (Haase \& Marcia, 1994; Haase \& Philips, 2004). Participants are asked to mark how much they agree or disagree with each sentence using response options from 1 (strongly disagree) to 6 (strongly agree) (Haase, et al., 1999). Higher total scores indicate a higher degree of resilience.

Secondary Outcome Measures

Name	Time	Method
Perceived Social Support (PSS)	1 year	It is developed from the Perceived Family Support Scale of Procidano \& Heller (1983). The scale has 20 questions and Cronbach's alpha reliability coefficients are .88 and 0.91 (Procidano \& Heller, 1983; Puskar \& Bernardo, Stark, 2008).Higher total scores indicate a higher social support.
Self-Transcendence Scale	1 year	There are 15 questions, scored from 1 to 4. The higher the score, the higher the self-transcendence ability. The Cronbach's alpha reliability coefficient of the tool is .70-.94 (Chen, 2009); the pretest Cronbach's alpha reliability coefficient of the Chinese version of the literature is. 79, and the post-test Cronbach's alpha reliability coefficient is .78 (Chen, 2009).
Jalowiec Coping Scale-Revised	1 year	It is developed from Jalowiec et al, (1984). There are 40 items. The test-retest reliability of the instrument is 0.79. The internal consistency within the subscale is between 0.85-0.86. The total scale α=0.78 and the subscale is 0.84 (question solution), 0.83 (defensive behavior) (Jalowiec et al, 1984).Higher total scores indicate a higher frequency of used coping behaviors.
Spiritual Perspective Scale (SPS)	1 year	The SPS was developed from Jalowiec et al, (1984). There are 40 questions in total. The test-retest reliability of the instrument is 0.79. The internal consistency within the subscale is between 0.85-0.86. The total scale α=0.78 and the subscale is 0.84 (question solution), 0.83 (defensive behavior) (Jalowiec et al, 1984).
Family Strengths	1 year	It is developed by Olson, McCubbin, Barnes, Larsen, Muxen, \& Wilson (1985). There are 12 questions in the scale, and the items are: family self-esteem, family trust, family loyalty, family problem-solving ability, question options range from strongly agree to strongly disagree, the score range is from 12 to 60, the higher the score, the higher the family strength, the alpha reliability coefficients are .73 and .88, Test-retest reliability was .73 and .79.
Parent-Adolescent Communication	1 year	It is developed from Olson, McCubbin, Barnes, Larsen, Muxen, \& Wilson, (1985). There are 30 questions, which can be divided into two subscales, with reliabilities of 0.87 and 0.78 respectively, using the confirmatory factor analysis (Olson et al. ,1985). The Cronbach's alpha coefficient of the Chinese version of the father-child communication questionnaire is .76, the Cronbach's alpha coefficient of the mother-child communication questionnaire is .84(Chen, 2001). Higher scores indicate better communication.
Symptom Distress Scale (SDS)	1 year	SDS is developed from McCorkle \& Young (1978), with a total of 13 questions, using a 1-5 scoring method. Higher of the total score, the higher the degree of symptom distress. The reliability of the instrument (r=.79-.89), using Ware's health perception scale test (r=0.9) (McCorkle, 1978). The reliability of the revised Chinese version is (Cronbach's α =.91-.96), the content validity index (CVI) is 0.95, and the readability is 0.95 (Lai, 1998). Higher total scores indicate a higher degree of symptom distress.
mishel Uncertainty in Illness Scale - Revised	1 year	It is developed from the uncertainty scale developed by Mishel, 1981, with a total of 33 questions. The reliability of the instrument is 0.91. The reliability of each scale ranges from 0.64-0.89, and its validity has been verified through theory (Mishel, 1981). The internal consistency reliability of the Chinese version of the literature is Cronbach's α =0.87, the internal consistency of the subscales is 0.85 and 0.66, and the simultaneous validity is 0.571 (Xu \& Huang, 1996). Higher total scores indicate a higher degree of uncertainty.
Family Adaptability and Cohesion Scale	1 year	It is developed from Olson, et al, (1985), with a total of 30 questions. The reliability of the instrument is .87 (cohesion) and .78 (adaptability) (Olson et al, 1985); the Chinese version of the document Cronbach's α\>0.6 (Fei, 1991).The higher the score is, the higher the family adaptability and cohesionself-transcendence.

Trial Locations

Locations (1)

Kaohsiung Medical University; 🇨🇳 Kaohsiung, Taiwan