Haemoglobinopathy Registry

Not Applicable

Recruiting

• Conditions: Thalassaemia; Sickle cell disease; Blood - Other blood disorders

• Registration Number: ACTRN12617000051347
• Lead Sponsor: Monash University

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2017-01-11
• Last Update Posted: 2 May 2022

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 1000

Inclusion Criteria

Patients with a diagnosis of sickle cell disease, alpha-thalassemia, beta-thalassemia and other haemoglobinopathies.

Exclusion Criteria

patients who have chosen to opt-off the registry.

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Survival assessed by review of hospital medical records[five years]

Secondary Outcome Measures

Name	Time	Method
Variation in treatment assessed by hospital records[five years]