Program evaluation of hemophilia society activities
Not Applicable
- Conditions
- Health Condition 1: D67- Hereditary factor IX deficiencyHealth Condition 2: D66- Hereditary factor VIII deficiency
- Registration Number
- CTRI/2022/10/046558
- Lead Sponsor
- I
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Open to Recruitment
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
Persons with hemophilia, care givers (Mother, Fathers and close relatives) those associated for more than 2 years with the society, executive members of the chapters with >2 Years of experience as office bearer.
Exclusion Criteria
Females who are diagnosed with hemophilia, PwH who are not a member of a chapter, parents who are not living with PwH, non-residents of India.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method The proposed study aims at exploring the day to day life and the impact of hemophiliacs being a part of the hemophilia societyTimepoint: 16 months
- Secondary Outcome Measures
Name Time Method The evidence of the positive impacts made on the life of PwH and their family by the hemophilia societyTimepoint: 12 months