Malignant endocrine tumors in childhood and adolescence - MET register

niversitätskinderklinik0 个研究点目标入组 200 人开始时间: 2022年6月13日最近更新: 2024年8月19日

适应症

试验速览

暂无简介。

•1. Diagnosis of the following tumor entities:
•a) Thyroid carcinomas (TC)
•- differentiated thyroid carcinoma (DTC)
•- medullary thyroid carcinoma (MTC)
•- C-cell hyperplasia (CCH) with pathogenic variant in the RET proto-oncogene
•- other thyroid carcinomas
•b) Adrenocortical tumors (ACT)
•- adrenocortical carcinoma (ACC)
•- adrenocortical adenomas (ACA)
•- adrenocortical tumors of uncertain dignity (ACx)
•c) pheochromocytoma (PCC), paraganglioma (PGL)
•d) gastroenteropancreatic neuroendocrine neoplasia (GEP-NEN)
•Neuroendocrine tumors (NET) and carcinomas (NEC) of the appendix, bronchus, pancreas and other locations
•2. Age at diagnosis: 0 to 18 years of age
•Even in the case of young adult patients, the MET Help Desk can provide consultation after consenting to the transfer of data.
•3. Information, education, written consent of the patient or legal representitive to participate in the MET registry.

•Lack of consent of the patient or the legal representitive to participate in the register.

发起方

niversitätskinderklinik