Healthy living for young people with a chronic illness: finding the balance

Completed

Conditions: 10018424
10029317
10024450
muscular disease
diabetes

Registration Number: NL-OMON35574

Lead Sponsor: TNO

Brief Summary: Not available

Detailed Description: Not available

Recruitment & Eligibility

Status: Completed

Sex: Not specified

Target Recruitment: 60

Inclusion Criteria

Participants who
- either have diabetes (type 1 or 2) or a progressive muscular disease (Duchenne; SMA spinal muscular atrofy type 2; or HMSN hereditary motor and sensory neuropathy)
- are 12 to 18 years old
- according to their physician take care of their disease at least reasonably well and/or have a constructive attitude towards living with their disease
- indicate that they are at least reasonably happy (Affective evaluation). At least report mark 6 on the item: All things taken together, how happy or unhappy are you?
- indicate that they are at least reasonably satisfied with their life (Cognitive evaluation). At least report mark 6 on the item: Considering your life as a whole, have you achieved the most important things you want in life?

Exclusion Criteria

- not meeting the above inclusion criteria
- non-availability of a computer with internet access at home

Study & Design

Study Type: Observational non invasive

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>The research variables are:<br /><br>- participants' descriptions of having a good life<br /><br>- participants' descriptions of factors that contribute to having a good life<br /><br>and to finding a balance between a good life and taking care of their illness;<br /><br>this will mostly concren skills, competencies and character traits.</p><br>

Secondary Outcome Measures