of Caregiver Family Members for the Disabled in Bukhara

Completed

• Conditions: Caregiver Burden

• Registration Number: NCT05351528
• Lead Sponsor: Karadeniz Technical University

Brief Summary

The responsibilities of caring for a disabled family member may cause caregivers to develop risky behaviors for caregiver's health. Therefore, we aimed to examine the relationship between caregiver burdens and healthy lifestyle behaviors of family members caring for a disabled child.

Detailed Description

In the study, family members living in Bukhara, Uzbekistan, and caring for a disabled person under the age of 24 were evaluated. Caregiver burden was evaluated with the Caregiver Burden Scale and healthy lifestyle behaviors were evaluated with the Healthy Lifestyle Behaviors Scale II. The fact that there is no earlier study on caregivers of disabled people in Uzbekistan and no research in the literature examining the relationship between caregiving burden and healthy lifestyle behaviors in individuals with disabled children, make this study unique.

Study Timeline

• Study Start: 2021-11-26
• Primary Completion: 2021-12-30
• Study Completion: 2022-03-30
• Status Verified: 2022-04
• Study First Submitted: 2022-04-11
• Study First Submitted QC: 2022-04-22
• Last Update Submitted: 2022-04-22
• Study First Posted: 2022-04-28
• Last Update Posted: 2022-04-28

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 155

Inclusion Criteria

• Volunteering to participate in the study
• Having a disabled child to take care of
• Being literate

Exclusion Criteria

• The age of the disabled person being cared for is over 24 years old.

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Assessment of the child	Two months	Gender
Assessment of the child age	Two months	Age
Socio-demographic information	Two months	Age, height, body weight, employment status, income status, marital status
Number of child	Two months	Number of healthy and disabled children
Caregiver Burden Scale	Two months	The scale has a Likert-type rating ranging from 0 to 4 as "never, rarely, sometimes, quite often, almost always". A minimum of 0 and a maximum of 88 points can be obtained from the scale. The items in the scale are generally related to the social and emotional domain, and a high score indicates a high level of distress.

Secondary Outcome Measures

Name	Time	Method
Healthy Lifestyle Behaviors Scale II	Two months	The scale is scored as "never (1)-regularly (4)". The lowest score for the whole scale is 52 and the highest score is 208. The high scores obtained from the scale indicate how high the individual applies the specified health behaviors.

Trial Locations

Locations (1)

Karadeniz Technical University; 🇹🇷 Trabzon, Turkey