The CareNET trial: Caring for carers of people with advaNced cancer at hospiTal discharge

Not Applicable

Completed

• Conditions: Advanced Cancer; Carers needs; Discharge planning; Cancer - Any cancer; Physical Medicine / Rehabilitation - Occupational therapy; Public Health - Health service research

• Registration Number: ACTRN12622001325796
• Lead Sponsor: Peter MacCallum Cancer Centre

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2022-10-12
• Study Completion: 2023-07-06
• Last Update Posted: 1 April 2024

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 5

Inclusion Criteria

Carer participants must meet the inclusion criteria in order for patient participants to be included.
Carer inclusion criteria
•Must identify as carer. This study will refer to a carer as Lay people in a close supportive role who share in the illness experience of the patient and who undertake vital care work and emotion management” (2)
•Able to provide informed consent
•English speaking and able to read at 5th grade level

Patient inclusion criteria
- Diagnosis of advanced cancer
- Must have a person (family member or friend) that identifies as their carer
- Planned discharge home
- English-speaking
- Able to provide informed consent or person consenting on participants behalf (authorized representative) *
*Patients providing own consent will complete all measures, patients consenting via authorised representative will not complete self-rating measures (Quality of Life (EQSD)and Survey on costs)

Clinician inclusion criteria
•Occupational therapist delivering the intervention during the trial.

Process for identifying an authorised representative for patient
If the participant is not able to provide consent, the authorised representative will be identified and approached for consent to participate. As defined by the Health Records Act – Section 85, the authorised representative (the individual who can make decisions regarding consent to use and disclose health information) can be one of the following:

a.A guardian of the individual; or
b.An attorney for the individual under an enduring power of attorney; or
c.The individual medical treatment decision maker within the meaning of the Medical Treatment Planning and Decisions Act 2016; or
d.An administrator within the meaning of the Guardianship and Administration Act 2019; or
e.A parent of the individual if the individual is a child; or
f.Otherwise empowered under law to perform duties or exercise powers in the best interests of the individual

Exclusion Criteria

Participants who meet any of the following criteria will be excluded from study entry:
Patient exclusion criteria
- Planned discharge to residential care or subacute.

Study & Design

• Study Type: Interventional
• Study Design: Not specified