DRKS00012421已完成不适用
Evaluation of specialised outpatient palliative care using the example of Hesse (Germany) - ELSAH
Fachverband SAPV Hessen e.V.0 个研究点目标入组 399 人开始时间: 2017年5月19日最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 399
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 18 Years 至 one（—）
- 性别
- All
入选标准
- •Further definition of the term ‘quality of care’ and development of the set of tools:
- •Patients, who 1.) are included in specialized outpatient palliative care, regardless of diagnosis 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study 5.) have the linguistic proficiency to participate in an interview 6.) have the communication skills to actively communicate.
- •Relatives 1.) who agreed to participate in the study, 2.) the patient himself/herself, or an official representative responsible for the patient's health affairs, agreed to interviewing the relative 3.) are able to take part in an interview in German language.
- •Health professionals, who 1.) collaborate with or work in a specialised outpatient palliative care-team; 2.) agreed to participate in the study; 3.) are able to take part in an interview in German language
- •--------------------
- •Pilot Phase and Implementation of the set of tools:
- •Patients, who 1.) are included in specialized outpatient palliative care, regardless of diagnosis 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study and agreed to the usage of their data for research purposes 5.) are fluent in German and therefore able to complete a questionnaire and can follow the course of an interview
- •Relatives, 1.) of a patient who is included in specialized outpatient palliative care 2.) age = 18 3.) are able to consent 4.) agreed to participate in the study and agreed to the usage of their data for research purposes 5.) are fluent in German and therefore able to complete a questionnaire and can follow the course of an interview
- •Health professionals (SAPV-members) who 1.) are currently working in a palliative care team located in Hesse, regardless of profession 2.) agreed to participate in the study 3.) are fluent in German language
排除标准
- •Further definition of the term 'quality of care' and development of the set of tools:
- •Patients are excluded, who 1). are not able to give study consent; 2.) did not agree to participate in the study; 3.) are not or only partially able to follow the course of the interview.
- •--------------------
- •Pilot phase and implementation of the set of tools:
- •Patients who 1.) are not able to consent, 2.) did not agree to participate in the study or did not agree to the usage of their data for quality management and research purposes 3.) are not able to participate due to life situation, e.g. a supplementary survey for research purposes would worsen health and condition of the patient. Therefore, an SAPV-professional will assess the situation before starting a survey. There are no criteria for this kind of assessment, it depends on the assessment of the SAPV- members.
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